拯救幾乎很難，一個家庭有自閉症孩子，就等於一生需要陪伴，需要付出全部的心血，精力，金錢。所以很難熬葉很難完全治癒。最關鍵的目前有效方法是有效的適合的康復訓練。

這個問題提的很現實，談起來也十分複雜，因為拯救一個家庭甚至拯救一個人都不是一件輕而易舉的事情。對這個問題來講，我覺得唯一的途徑就是改變自閉症譜系群體的現狀，而改變現狀從某種程度來說是最難的了吧。

最根本需要改變的是目前我們對“自閉症”的認知，如果把我們普通人的人生算作是Normal模式，自閉症譜系的人生就是Hard模式，甚至Very hard，Hardest！但無論哪種模式都是人生，他們都是一個個活生生的人的個體，和我們普通人毫無二至。

之所以說他們是高難度模式人生，是因為他們先天並伴隨終生的社交障礙，會阻礙他們融入主流社會，會難以與我們普通人溝通，會招來不理解，會被人排斥，會讓人嘲笑，甚至被歧視！他們的成長是如此艱難，任何我們覺得理所當然的事情對他們來說就有可能是遙不可及的夢，笨鳥必須先飛，他們的人生髮展和從兒時起的引導與關愛和包容是分不開的。

如果一個家庭遭遇自閉症孩子，從意識上就認為是一場災難，“自閉症”就是禍根，自閉症孩子就是“萬惡之源”的話，那就基本決定了其人生走向，是個悲劇，誰也拯救不了。

所以，對自閉症的認知先要改變，我們每個人看待自閉症都要改變，每個人都該將心比心，不要以為局外人就可以冷眼旁觀，不要因為不身處其中就想當然，因為自閉症從遺傳角度來說任何一個家庭都有可能遭遇到。他們是最純粹的折翼天使，處於我們生存競爭的底層。

對於自閉症譜系家長來說，更應該努力去發現挖掘孩子的絕無僅有的閃光點，他們所有的行為都是符合我們普通人發展歷程的，他們的成長只不過被不同程度地無限拉長，我們只需要給他們最大的理解與包容，時間會給我們最出乎意料的答案。

以上我寫的並不是的雞湯，而是和我家人見人愛花見花開車見車爆胎的自閉症譜系女王走到今天的感悟，每個人的人生經歷不同理解也不同，但我相信人在所謂“絕境”面前唯一的選擇就是堅持吧，曙光自會在眼前。

願全天下的自閉症孩子的明天會更好，願這世界會改變。

我沒有那麼多專業回答，就自己的經驗來說平時夫妻倆的處事態度很重要，尤其是在孩子面前的時候，其實很多孩子都懂的，你的煩惱，憂愁，等等都會給孩子壓力，千萬要把壓力杜絕在他的感覺以外。

如果有條件的話勁量帶他去旅遊，這是我自己的經驗，我家的孩子我花了一年去旅遊，情況大為好轉，現在自己穿衣吃飯，大小便自理，雙手摔動的動作大為減少，開口交流並且稱呼人了，可以操作一些手機過程，日漸好轉中！錢財身外物，別太看中，有所失必有所得！

我是“一路童行”兒童的健康顧問

在醫學上，自閉症又稱自閉症譜系障礙（ASD），是一種發育障礙，自閉症程度可輕可重，表現異常複雜，個體差異較大，但又有明顯的共性。

（以下用ASD代表自閉症）

目前ASD的患病數以10%到17%的比例增長，導致患自閉症的原因很複雜，但相關領域專家、學者，仍舊在不斷的探索研究其有效的治療方法，遺憾的是到目前為止最有效的治療方法還是康復訓練，目前的干預方法很多比如：ABA、結構化、地板時光、PRT方法等等，都能有效改善ASD患者的很多問題。

最近瀏覽了一個關於ASD患者腸道的問題研究，瞭解到可以透過一些營養干預來改善部分症狀，現在分享給大家。

研究表明，ASD患兒出現一種或多種胃腸道問題的比例為普通兒童的8倍，這些問題不僅給ASD患者帶來痛苦，還可能是導致很多ASD異常行為的原因。

對於嬰幼兒和兒童來說，腸道問題對身體的傷害很大，正常發育所需要的營養素缺乏，直接導致發育障礙。

在臨床研究中：

1、一名6歲的ASD孩子堅持了生酮飲食1個月之後，其行為和智力都得到了改善。

PS:生酮飲食（ketogenic diet）是一個高脂、低碳水化合物和適當蛋白質的飲食，不吃糖、主食，主要吃脂肪，肉，菜。

具體表現在：活躍度、注意範圍、對視覺和聽力的反饋、使用物件靈活度，應變能力，溝通技巧，害怕，擔心等情緒反應。

2、在6個月的時間裡，堅持生酮飲食的孩子，在交流、互動、動作行為等方面，都有所改善。

其中，有2名ASD男孩症狀有明顯改善，並從特殊教育課程中脫離，直接進入主流教育課程中接受培養。

然後是SCD-DF飲食

用於ASD的食療方法，首先是去掉造成傷害的食物（比如去掉容易引起身體過敏反應的小麥麩質和乳製品中的酪蛋白）。

SCD-DF飲食是SCD飲食（特殊碳水化合物）的改進版，即在SCD的基礎上加上去酪蛋白。

臨床試驗表明：

SCD-DF飲食對ASD患者有非常好的效果。

SCD-DF飲食不僅去除了最容易導致食物敏感的麩質和酪蛋白，而且還限制了除單糖之外的碳水化合物的攝入，適用範圍更廣。

微量營養素補充

ASD孩子普遍存在多種微量營養素的攝入不足，有必要對其進行相應營養狀況檢查。

按照循證醫學證據，補充維生素A、維生素D等微量營養素，改善患兒整體營養狀況和促進大腦發育。

對ASD患者有效的補充包括維生素B族（尤其是葉酸和B12）、維生素D、DHA、鋅、鎂、益生菌等。

注意：選擇膳食補充劑必須要非常謹慎，因為膳食補充劑在生產過程中會新增輔料，這些輔料對於ASD患者來說可能並不適合。

在看到“拯救”二字時，我似乎能聽到了自閉症兒童家庭所發出的無奈呼聲，對一個家庭而言，自閉症兒童意味著更多的付出，意味著更多的責任，而讓我們沮喪的是不知用何種方法才能把她們拉回正常的軌道。

自閉症早已被定義為一種“病”，而這種無法確因的病，卻讓無數的自閉症家庭陷入無盡的困擾之中，我們用迫切的心情尋醫問藥，然而，卻總是得不到令人滿意的答案。

作為一個家有自閉症兒童的家庭，我們除了呼籲社會予以關注之外，更多的要依靠我們自己的信念和力量，儘管讓她們迴歸正常很難，但只要我們努力就有希望。

我的建議有以下幾點：1.給予孩子更多的愛，相信一份永不言棄的愛能融化一切，讓孩子感知你的溫度，而不是冰冷。2.儘早干預。干預並不意味著一定要送入某個康復機構，當然有條件的送進靠譜的機構讓專業的人士給予引導也無可厚非。我想強調的是，干預勝於教育，教條主義不適合自閉症兒童，作為孩子最信任的人，家長一定要想方設法給孩子創造修正機會，而不是任由其發展。有一點你必須明白，你所有的干預動作都是為了孩子未來能夠融入社會，在孩子6歲前的成長關鍵，也是干預的黃金期。3.多運動。感統失調是多數自閉症兒童的共有症狀，解決這一問題的最佳手段就是運動。4.培養並挖掘愛好。找出孩子身上的閃光點，刻意練習，使之成為自身優勢。5.均衡營養，特別要提防維生素缺乏，營養是保證孩子健康成長的前提。

Patient Report: Autism Spectrum Disorder Treated With Camel Milk

使用駱駝奶治療自閉症譜系障礙

Christina M. Adams, MFAcorresponding author

克里斯蒂娜·M·亞當斯，MFA通訊作家

Abstract

This patient report is about my son, who was diagnosed with autism spectrum disorder (ASD) at 3 years of age, and the effects I observed when he began drinking camel milk daily. Beginning at age 9, he drank one half cup of raw camel milk a day and experienced overnight an improvement in his symptoms. His continued regular consumption of camel milk was associated with sustained symptom improvements for 6 consecutive years (2007-2013). This patient report is a road map of my navigations, consultations with experts and autism care providers, and the apparent effect of camel milk on autism spectrum disorder (ASD).

Key Words: Camel milk, autism spectrum disorder, patient report

摘要

這份病人報告是關於我的兒子的，他在3歲時被診斷為自閉症譜系障礙(ASD)，以及我觀察到的他開始每天喝駱駝奶的影響。從9歲開始，他每天喝半杯生駱駝奶，一夜之間症狀有所改善。他連續6年(2007-2013)持續飲用駱駝奶與症狀改善相關。這份病人報告是我的導航圖，是我與專家和自閉症護理提供者的諮詢，以及駱駝奶對自閉症譜系障礙(ASD)的明顯影響。

關鍵詞:駱駝奶，自閉症譜系障礙，患者報告

INTRODUCTION

As an infant, my son appeared normal and met the generally accepted growth and development milestones. He was calm and attentive, smiled at 6 weeks, laughed, and could focus on books and toys. He was affectionate and bonded with his parents and always showed appropriate separation anxiety. He spoke two clear words at 9 months and walked on his first birthday. However, beginning at 6 months, he started biting people and never pointed to objects. He also had very red cheeks, constipation, prolonged startle reflex, and infant torticollis.

介紹

我的兒子嬰兒期間看起來很正常，符合人們普遍接受的生長髮育階段。他平靜而專注，在6周時微笑，大笑，可以專注於書本和玩具。他和父母感情深厚，關係密切，表現出適當的分離焦慮。九個月大的時候，他就能清晰地說出兩個字，一歲生日的時候，他還能走路。然而，從6個月大開始，他就開始咬人，而且從不指向物體。他也有非常紅的臉頰，便秘，長期驚嚇反射，嬰兒斜頸。

EARLY AUTISM

Just before he turned 3 years old, my son was diagnosed with autism. He had loss of language and attention at 15 to 18 months, the appearance of hyperactivity, sensitivity to noise, and fixation on objects and water. He had difficulty interacting with others, was still biting and engaging in aggressive behavior, and had been dismissed from two preschools. Like many ASD children, he was found to have food intolerances and allergies, skin conditions, auditory processing delay, expressive/receptive language delay, constipation, and an intermittent tic disorder.

早期自閉症

就在我兒子3歲之前，他被診斷出患有自閉症。他在15到18個月的時候失去了語言能力和注意力，表現為極度活躍，對噪音敏感，對物體和水很執著。他很難與他人交流，仍然愛咬人，並有攻擊性行為，曾被兩所幼兒園開除。和許多自閉症兒童一樣，他被發現有食物不耐受和過敏、面板狀況、聽覺處理延遲、表達/接受語言延遲、便秘和間歇性抽動障礙。

After the diagnosis and continuing for years, he received a battery of tests including complete physical exams, electroencephalograms, neurological and sensory evaluations, auditory testing, and stool and urine testing for heavy metals, amino acids, organic acids, intestinal parasites, and Candida. Laboratory tests were ordered, including complete blood counts, metabolic profiles, and tests for immune-globulins and inflammatory markers. He also received regular vaccination through 15 months.

在確診並持續數年之後，他接受了一系列測試，包括完整的體檢、腦電圖、神經和感覺評估、聽覺測試，以及糞便和尿液中重金屬、氨基酸、有機酸、腸道寄生蟲和念珠菌的測試。要求進行實驗室檢測，包括全血計數、代謝情況、免疫球蛋白和炎症標誌物檢測。他還接受了15個月的定期疫苗接種。

My son was enrolled in 35 to 40 hours per week of intensive one-on-one therapy at our home in a clinically supervised program of applied behavioral analysis (ABA). He also had 3 hours per week of individual speech therapy and 2 hours per week of occupational therapy. His diet was gluten- and casein-free for 2 years with limited intake of sugar, yeast, and nuts. His medications included various antiviral (famciclovir, valaciclovir) and antifungal medications (nystatin, ketoconazole, amphotericin-B), selective serotonin reuptake inhibitors (SSRIs; citalopram, escitalopram) and blood pressure–reducing medication (guanfacine) to decrease hyperactivity and aggression. These medications, used daily and mostly added one at a time for careful observation, seemed to be beneficial. The combination of his treatments produced positive benefits that were confirmed in twice-monthly ABA clinic meetings, daily ABA data gathering, and pediatric ASD specialist office visits. As many children make limited gains with similar treatments, this progress earned my son a reputation as a “responder” in autism parlance.

我的兒子參加了一個應用行為分析(ABA)的臨床監督專案，每週在家接受35到40個小時的強化一對一治療。他每週還有3小時的個別語言治療和2小時的職業治療。他的飲食中有兩年不含麩質和酪蛋白，糖、酵母和堅果的攝入量有限。他的藥物包括各種抗病毒藥物(泛昔洛韋，伐昔洛韋)和抗真菌藥物(尼司他汀，酮康唑，兩性黴素b)，選擇性血清素再吸收抑制劑(SSRIs;西酞普蘭，艾司西酞普蘭)和降壓藥(胍法辛)來減少多動症和攻擊性。這些藥物，每天使用，大多一次增加一個仔細觀察，似乎是有益的。他的治療組合產生了積極的益處，這在每月兩次的ABA臨床會議、每天ABA資料收集和兒科ASD專家辦公室訪問中得到了證實。由於許多孩子透過類似的治療只能獲得有限的效果，這一進步為我的兒子贏得了孤獨症術語中“反應者”的名聲。

By age 5, this hard-working child had demonstrated significant improvement, passed the kindergarten readiness test, and began attending a public school with a shadow aide. ABA therapy dropped to 3 hours per week. He later attended a school for children with attention deficit/hyperactivity disorder with weekly social skill sessions and participated in lessons and activities outside our home with and without an aide. His schoolwork was at or above grade level with the anticipated exception of handwriting. Although he needed intermittent supervision to stay on task, his cognitive scores were all above average. He continued to struggle with prolonged eye contact, and his conversations, while inquisitive and mutually engaging, were sometimes inattentive and monologue-style. Nevertheless, he was bright and friendly and enjoyed social contact and outings with peers and friends. Interestingly, when he ate dairy products around age 7, even pizza with the cheese removed at a baseball game, he would develop many symptoms. Hand-flapping, circle and toe walking, inattention, and constipation would result within hours, and he once complained, “It feels like there"s dirt in my brain.” Though he had returned to gluten 2 years after his ASD diagnosis with no outward effects, he avoided dairy products and kept his sugar intake low.

到5歲的時候，這個勤奮的孩子表現出了顯著的進步，通過了幼兒園預備考試，並開始在一個影子助手的幫助下進入公立學校。ABA療法減少到每週3小時。後來，他參加了一所針對注意力缺陷/多動障礙兒童的學校，參加了每週一次的社交技能課程，並在有或沒有助手的情況下參加課外課程和活動。他的學業成績在年級或以上，除了預料中的書法以外。雖然他需要間歇性的監督才能完成任務，但他的認知成績都高於平均水平。他繼續與長時間的目光接觸作鬥爭，他的談話雖然好奇而又相互吸引，但有時是漫不經心的、獨白式的。儘管如此，他還是很開朗、友好，喜歡與同齡人和朋友進行社交和郊遊。有趣的是，當他在7歲左右吃乳製品時，即使是在棒球比賽中去掉乳酪的披薩，他也會出現許多症狀。拍手、繞圈、用腳趾走路、注意力不集中，幾小時內就會便秘。雖然他在被診斷為自閉症譜系障礙兩年後又開始食用麩質，但他沒有食用奶製品，也沒有攝入過多的糖。

Editors" Remarks

編輯備註

In this patient report, a mother shares her observations and assessment of the effectiveness and safety of camel"s milk for her autistic son. We believe this patient report helps to communicate her experience of the care her family received. It will also inform clinicians about how patients experience the care they provide. We support reporting the patient"s perspective.

在這份病人報告中，一位母親分享了她對駱駝奶對她患有自閉症的兒子的有效性和安全性的觀察和評估。我們相信這個病人的報告有助於傳達她的經驗，她的家人得到的照顧。它也將告知臨床醫生病人如何體驗他們所提供的護理。我們支援報告病人的觀點。

Despite this remarkable progress, at age 9, my son began to have significant behavioral issues: sudden hyperactivity, loss of attention, distracted language, and loss of self-regulation. These symptoms were exacerbated when he had not eaten for 2 to 3 hours. Visits to his treating ASD physicians, titration of existing medications, and additional dietary measures did not seem to help. A trial of SSRI (fluoxetine) made him dazed and anxious and seemed to worsen the behavioral issues. It was becoming difficult to prompt and cope with his actions as discipline and safety techniques were no longer effective. As his mother, I was increasingly taxed and my outlook was becoming ominous.

儘管有了這些顯著的進步，在9歲的時候，我的兒子開始出現嚴重的行為問題:突然的多動症、注意力不集中、語言不集中、自我調節能力下降。當他2到3小時沒有進食時，這些症狀會加重。他去看治療自閉症譜系障礙的醫生，對現有藥物進行滴定，並採取額外的飲食措施，似乎都沒有效果。一次SSRI(氟西汀)的試驗使他頭昏眼花，焦慮不安，似乎使行為問題惡化。由於紀律和安全措施不再有效，他的行動越來越難以及時處理。作為他的母親，我的稅負越來越重，我的前景也變得不妙。

TREATMENT WITH CAMEL MILK

駱駝奶治療

On October 10, 2007, 2 weeks before my son"s tenth birthday, he drank his first half cup (4 oz) of thawed raw unheated camel milk. I chose this course because I had spent the previous 2 years studying camel milk and consulting people familiar with its use. In fall 2005, a camel farmer spoke to me about the use of camel milk in Middle Eastern hospitals for premature babies due to its reputed nonallergenic and nutrient-rich qualities. That information led me to theorize the milk might strengthen my son"s immune system and thus improve his functioning and also serve as an alternative dairy product. I reviewed the scant literature that evening and over the next few months. In 2006, I found Dr Reuven Yagil"s brief 2005 report on several children with ASD responding positively to camel milk. I then consulted Israeli-American scientist Amnon Gonenne, PhD, on his theory that camel milk may act as an anti-inflammatory agent and might help my son. Reassured by anecdotal reports and conversations with healthcare providers and camel milk producers, I concluded the risk of trying camel milk was minimal. One of my son"s physicians signed a letter authorizing his need to consume camel milk. I then arranged to receive bottles of raw frozen camel milk from Israel. The camel milk was tested for the presence of bacteria prior to freezing, stored at −20° C, and then shipped by air to me.

2007年10月10日，就在我兒子十歲生日的前兩週，他第一次喝下了半杯(4盎司)解凍但未加熱的生駱駝奶。我選擇了這個治療，因為我在過去的兩年裡一直在研究駱駝奶，並諮詢熟悉它用途的人。2005年秋天，一位養駱駝的農民告訴我，中東地區的醫院使用駱駝奶餵養早產兒，因為駱駝奶被認為不會引起過敏，而且營養豐富。這些資訊讓我想到，這種牛奶可能會增強我兒子的免疫系統，從而改善他的功能，還可以作為一種替代奶製品。那天晚上和以後的幾個月裡，我查閱了一些零星的文獻。2006年，我發現Reuven Yagil博士2005年關於幾個ASD患兒對駱駝奶有積極反應的簡短報告。然後我諮詢了以色列-美國科學家Amnon Gonenne博士，他的理論是駱駝奶可能有消炎的作用，可能對我兒子有幫助。我從坊間傳聞以及與醫療服務提供商和駱駝奶生產商的對話中得到了安慰，我得出結論:喝駱駝奶的風險很小。我兒子的一位醫生簽署了一封信，授權他喝駱駝奶。然後我安排從以色列接收了幾瓶生的冷凍駱駝奶。駱駝奶在冷凍前進行了細菌檢測，儲存在- 20°C，然後空運給我

On the morning after my son ingested camel milk, he demonstrated astonishing improvements in behavior including eye contact, communication, emotional expression (“I really love you; you"re awesome; you do so much for me”), and self-organization. He ate breakfast more neatly, noted his schedule, put on his shoes, and got his backpack for school while conversing at the same time.

在我兒子喝下駱駝奶的第二天早上，他的行為表現出了驚人的改善，包括眼神交流、交流、情感表達(“我真的愛你;你太棒了;你為我做了這麼多”)，以及自我組織。他把早餐吃得更乾淨利落了，記下了自己的日程安排，穿上鞋子，背起書包去上學，同時還在說話。

He continued consuming 4 oz of camel milk daily with rapid continued improvement in behavior and motor planning. For example, he started looking both ways when crossing streets and parking lots. His erratic behavior stopped, and my frequent offerings of extra protein, which had only somewhat mitigated the problem, were no longer needed. Within 3 weeks, there was also a marked improvement and smoothing of his skin condition. Increasing the daily amount of camel milk to 8 oz seemed to cause new facial grimaces and jerking in one arm, which disappeared when his intake returned to 4 oz. His pragmatic language and vocabulary skills were improved, and other academic skills tested above average and exceptional in some areas.

他每天繼續喝4盎司的駱駝奶，行為和運動計劃都得到了快速的持續改善。例如，他在過馬路和停車場時開始左顧右盼。他的古怪行為停止了，我經常提供額外的蛋白質，這隻在一定程度上緩解了問題，不再需要了。在3周內，他的面板狀況也有了明顯的改善和平滑。每天增加到8盎司的駱駝奶似乎會導致新的面部表情和一隻手臂的抽搐，但當他的攝入量回到4盎司時，這些症狀就消失了。

Interruption of camel milk consumption on several occasions resulted in behavioral and physiological lapses. Just before he turned 12, while I was away from home for two and a half weeks, he did not take camel milk. His school behavior deteriorated to the point that he was in danger of being moved to a special education classroom. Within 24 hours of resuming the camel milk intake, he returned to prior functioning levels. From age 12 to 16 years (present age), he continued on variable amounts of camel milk from Israel and later from the United States, along with conventional medications.

有幾次中斷食用駱駝奶，導致他行為和生理上的疏失。就在他12歲之前，我離開家兩個半星期，他沒有喝駱駝奶。他在學校的行為惡化到他有被轉移到特殊教育教室的危險的地步。在恢復喝駱駝奶的24小時內，他恢復了之前的功能水平。從12歲到16歲(現在的年齡)，他繼續飲用來自以色列和美國的不同數量的駱駝奶，以及傳統的藥物

Camel milk has offered observable and sustained benefits to my son"s health and functioning. Along with medications and dietary management, I believe camel milk has contributed to the successful management of his symptoms. My son views camel milk positively and is reassured to know he can always access it.

駱駝奶對我兒子的健康和機能有顯著而持久的益處。除了藥物治療和飲食管理，我相信駱駝奶對成功地控制他的症狀也有貢獻。我的兒子對駱駝奶持肯定的態度，他知道自己隨時都能喝到駱駝奶，這讓他感到安心。

A MOTHER"S PERSPECTIVE

一個母親的觀點

Children with ASD present multiple lifelong challenges. For such a catastrophic and increasingly prevalent disorder, medical treatment and care is debatable, confusing, and expensive. My son"s immune and behavioral responses often correlated to dietary matters. Camel milk, a natural food suitable for premature infants, intrigued me as possibly having inherent value as a health and food substance. Camel milk as a trial treatment seemed less invasive and costly than specialist care, medications, alternative treatments, and behavioral interventions.

ASD患兒存在多種終身挑戰。對於這樣一種災難性的、日益普遍的疾病，醫療和護理是有爭議的、令人困惑的和昂貴的。我兒子的免疫和行為反應通常與飲食有關。駱駝奶是一種適合早產兒食用的天然食品，它作為一種健康食品的內在價值引起了我的興趣。與專家護理、藥物治療、替代治療和行為干預相比，駱駝奶作為一種試驗治療似乎侵入性更小，成本更低。

Just as importantly, camel milk"s history gave me assurance. Camel milk has been used for centuries as a medicine in Middle Eastern, Asian, and African cultures. Nomadic cultures have reported living off camel milk exclusively with no apparent loss of health. The United Nations lauded camel milk"s nutritional content in 2006.1

Although anecdotal information on camel milk exists for a variety of illnesses, documented data related to autism are scarce. Jodie Dashore, a board-certified doctor of occupational therapy in private practice in the United States, has begun documenting behavioral outcomes of ASD children with cormorbidities who are ingesting raw camel milk from the United States.

Global attention on the assessment, causes, and treatment of ASD continues to provide parents of autistic children with hope.

雖然關於駱駝奶的軼事資訊存在於各種疾病中，但與自閉症相關的文獻資料卻很少。Jodie Dashore是美國私人執業的職業治療專業認證醫生，她已經開始記錄患有自閉症譜系障礙的兒童從美國攝取生駱駝奶後的行為結果。

全球對ASD的評估、病因和治療的關注繼續為自閉症兒童的父母帶來希望

My message to parents and physicians would be as follows:

•Intuition of parents and/or patients is critical to pursuing connections between symptoms and potential treatments.

•Communicate all symptoms, even those that seem minute or insignificant, to healthcare providers.

•Affected parents and patients often know when a behavior or symptom is unusual or suspicious.

•Conduct “due diligence” on all therapies, work in partnership with credentialed health providers to assess and ensure safety of new therapies, and always introduce new therapies methodically.

•Document the course of treatment and data from life events with dates and times.

•Camel milk is an available food product with potential therapeutic value. It tastes “just like milk” and can be flavored to preference.

我給家長和醫生的資訊如下:

•對父母和/或患者的直覺是尋求症狀和潛在治療之間聯絡的關鍵。

•向醫療服務人員傳達所有症狀，即使是那些看起來微不足道的症狀。

•受影響的父母和患者通常知道什麼行為或症狀是不尋常的或可疑的。

•對所有治療方法進行“盡職調查”，與有資質的醫療服務提供者合作，評估並確保新療法的安全性，並始終有條不紊地引入新療法。

•記錄治療過程和生活事件的資料，並註明日期和時間。

•駱駝奶是一種有潛在治療價值的可用食品。它嚐起來“就像牛奶”，可以根據個人喜好調味

Acknowledgments

The author would like to acknowledge Amnon Gonenne, PhD, who served as her scientific consultant over the years while generously sharing his advanced knowledge of human immune function and camel milk. The author also acknowledges Jodie Dashore, OTD, MS, OTR/L, for reviewing the author"s son"s test results and sharing her data on recent camel milk usage by children with autism spectrum disorder.

致謝

作者想要感謝Amnon Gonenne博士，她多年來一直擔任她的科學顧問，並慷慨地分享了他在人類免疫功能和駱駝奶方面的先進知識。作者還感謝Jodie Dashore, OTD, MS, OTR/L，感謝她審閱了作者兒子的測試結果，並分享了她關於最近患有自閉症譜系障礙的兒童使用駱駝奶的資料。